Have you noticed the wave of blogging going on among women with chronic illness? Do you find it helpful?

New York Times blogger, Paula Kamen, writes: “The basic message of the growing number of young women blogging about chronic illness - who have just become a significant force only in the past three years or so - is not one of victim hood: It’s to concentrate on what you can do, not what you can not.”

I agree and hooray for this.

And, in that same article, Jenni Prokopy of chronicbabe.com says, “... I really believe that when communities of women, or when communities of people, get together and talk about what they’re going through and share resources and information and ideas, they can bring about change and they can help each other live better.”

Women (or men) can only benefit from sharing their stories — chronic illness is such an isolating experience. So how we can bring about the change that will help each of us live better?
But it’s one thing to write about the frustration of not being able to go to a cooking class or a family party -or even your kid’s soccer tournament. I’ve had all those experiences and I’m not saying the disappointment isn’t keen.

But what about when you can’t show up for an important work meeting? Or you have to tell your boss you’re going to miss a key deadline because you’re lying in bed in pain?
Both Paula Kamen and Jenni Prokopy have figured out for themselves how to keep working {girlfriend} - in the face of pain and fatigue. You need more than just a place to vent and to be heard. You need the tools and the tactics that will help you stay part of the world of work — in whatever way you want.

And that ’s just what our book, Women Work and Autoimmune Disease: Keep Working Girlfriend! will do for you. 

What blogs do you read to get support or information for your life with a chronic illness?

PS - There are still a few more galley copies left if you want to write a review for Amazon.com. Email me before they’re all gone!

OH - before I forget - speaking of bloggers and chronic illness/pain.  This month’s March Headache  blog carnival is up.  The topic is: Maintaining Friendships with migraines and headaches!  Perfect for girlfriends!
Rosalind

aka cicoach.com the resource for professionals with chronic illness

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