Comments on: Medicines for Autoimmune Diseases still experimental http://keepworkinggirlfriend.com/2008/07/09/medicines-for-autoimmune-diseases-still-experimental/ Mon, 25 Apr 2011 13:13:58 +0000 hourly 1 http://wordpress.org/?v=3.1.3 By: Leslie Rott http://keepworkinggirlfriend.com/2008/07/09/medicines-for-autoimmune-diseases-still-experimental/comment-page-1/#comment-3523 Leslie Rott Tue, 15 Jul 2008 11:50:39 +0000 http://keepworkinggirlfriend.com/?p=339#comment-3523 Thanks for your nice comment, Joan! Thanks for your nice comment, Joan!

]]> By: Joan Friedlander http://keepworkinggirlfriend.com/2008/07/09/medicines-for-autoimmune-diseases-still-experimental/comment-page-1/#comment-3513 Joan Friedlander Mon, 14 Jul 2008 17:55:49 +0000 http://keepworkinggirlfriend.com/?p=339#comment-3513 RXgirl, thank you for writing about your experience with meds. It took 13 years before my body really seemed to get sorted out with this, and nameless stops and starts with the medicines, including a change in diagnosis. I do think it's good to remember that the statistics for cancer are actually low, even though higher than for people who don't take these drugs. At the time I decided to surrender to taking Imuran, in addition to the conversations with my doctor, I read an article in the Crohn's Colitis Foundation magazine that said one of the greatest contributing factors to recurrence of symptoms is NOT taking meds consistently. I saw myself in the description so I decided to buckle down and "surrender" to the routine. It was not the only thing I did to help my body get stronger, but I feel it was important at the time. I applaud you for your continuing intention to find your way to wellness as naturally as possible, whenever possible. There's no doubt it's a tricky road. If you're like me, you might think that because you have to go back to taking the drug, you failed. Not so. You're body just needs the help. Be well, Joan RXgirl, thank you for writing about your experience with meds. It took 13 years before my body really seemed to get sorted out with this, and nameless stops and starts with the medicines, including a change in diagnosis. I do think it’s good to remember that the statistics for cancer are actually low, even though higher than for people who don’t take these drugs.

At the time I decided to surrender to taking Imuran, in addition to the conversations with my doctor, I read an article in the Crohn’s Colitis Foundation magazine that said one of the greatest contributing factors to recurrence of symptoms is NOT taking meds consistently. I saw myself in the description so I decided to buckle down and “surrender” to the routine. It was not the only thing I did to help my body get stronger, but I feel it was important at the time.

I applaud you for your continuing intention to find your way to wellness as naturally as possible, whenever possible. There’s no doubt it’s a tricky road. If you’re like me, you might think that because you have to go back to taking the drug, you failed. Not so. You’re body just needs the help.

Be well,
Joan

]]> By: Leslie Rott http://keepworkinggirlfriend.com/2008/07/09/medicines-for-autoimmune-diseases-still-experimental/comment-page-1/#comment-3504 Leslie Rott Mon, 14 Jul 2008 11:31:25 +0000 http://keepworkinggirlfriend.com/?p=339#comment-3504 Just wanted to let you know that I've posted a review of your book on my blog. You can view it here: http://gettingclosertomyself.blogspot.com/2008/07/women-work-and-autoimmune-disease-keep.html Just wanted to let you know that I’ve posted a review of your book on my blog. You can view it here:
http://gettingclosertomyself.blogspot.com/2008/07/women-work-and-autoimmune-disease-keep.html

]]> By: Rxgirl http://keepworkinggirlfriend.com/2008/07/09/medicines-for-autoimmune-diseases-still-experimental/comment-page-1/#comment-3471 Rxgirl Sun, 13 Jul 2008 20:34:05 +0000 http://keepworkinggirlfriend.com/?p=339#comment-3471 I have RA. I've been on Methotrexate (also an anti-rejection medication) and Enbrel (very similar to Remicade). I stopped taking Methotrexate on my own, and I advised my doctor why. I began doing research and going to through allergy test to find if certain foods were causing allergies, as I had suspected. I cut out several allergens and I was significanly better. But now I doing poorly again. Time to bring on the methotrexate. But I do worry about the risks of cancer. Considering I have 2 auto-immune diseases, I can't help but to think I am at greater risk for cancer. But congrats to you on not needing the meds. Maybe this time around, I can be off the meds for a good long while. I have RA. I’ve been on Methotrexate (also an anti-rejection medication) and Enbrel (very similar to Remicade). I stopped taking Methotrexate on my own, and I advised my doctor why. I began doing research and going to through allergy test to find if certain foods were causing allergies, as I had suspected.

I cut out several allergens and I was significanly better. But now I doing poorly again. Time to bring on the methotrexate. But I do worry about the risks of cancer. Considering I have 2 auto-immune diseases, I can’t help but to think I am at greater risk for cancer.

But congrats to you on not needing the meds. Maybe this time around, I can be off the meds for a good long while.

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