Resources
OTHER WEBSITES and BLOGS
CIcoach.com ~ http://cicoach.com - This site is filled with resources and information for those who want to live and work successfully with chronic illness.
Life Work Business Partners ~ http://lifeworkpartners.com - A website to build your business and your life. Time management and delegationsolutions for self employed professionals and entrepreneurs.
WorkingWithChronicIllness.com ~ http://WorkingwithChronicIllness.com - Rosalind’s other blog that gives stories, insight and suggestions about the issues that people with chronic illness face in continuing to be professionally successful.
CIcoach.com ~ http://cicoach.com - This site is filled with resources and information for those who want to live and work successfully with chronic illness.
Life Work Business Partners ~ http://lifeworkpartners.com - A website to build your business and your life. Time management and delegationsolutions for self employed professionals and entrepreneurs.
WorkingWithChronicIllness.com ~ http://WorkingwithChronicIllness.com - Rosalind’s other blog that gives stories, insight and suggestions about the issues that people with chronic illness face in continuing to be professionally successful.
Autoimmune Information Network ~http://aininc.org Barbara Yodice, an autoimmune woman herself, is on a mission to give those of us with AI the information we need.
Chronic Town - http://www.rs.4030.com ~ This blogger writes about living with chronic illness and being a mom.
Chronic Town - http://www.rs.4030.com ~ This blogger writes about living with chronic illness and being a mom.
ChronicBabe.com ~ http://ChronicBabe.com ~ This is a resource and on-line community for babes who just happen to be chronic.
Diabetes Mine - http://www.diabetesmine.com ~ A blog that is a �gold mine� of information about diabetes.
ErgoRehab, Inc. ~ http://ergorehabinc.com -A leading provider of continuing education and resources in ergonomics, return to work and work injury management/prevention. This website offers free downloads and resources for those dealing with chronic illness or injuries looking for ways to live better, achieve success, improve their health situation and acquire hope.
Healing Well.com ~ http://healingwell.com ~ community,information and resources for diseases, disorders and chronic illness
How to Cope with Pain ~ http://howtocopewithpain.org - resource for those who cope with chronic pain, their families, their friends and professionals who treat patients with chronic pain.
Liv A Betes ~ http://livabetes.com ~ Liv A Betes focuses on wellness inspiring comedy. Don’t miss The Glucose Police in GG’s Wisdom!
Lip Sticking: Smart Marketing to Women Online, http://windsormedia.blogs.com ~ This online blog is a marketing resource to all women.
The Cancer Blog - http://www.thecancerblog.com ~ This site offers information and resources to people living with cancer.
six until me - http://www.sixuntilme.com ~ Diabetes doesn’t define me but it helps explain me. Kerri writes from her heart about the daily struggles and laughs. This is a don’t miss.
Wise Women Group ~ http://wisewomengroup.com/wise-women-blogs/ ~ A woman’s place for information, motivation and connection.
Wise Women on Career Issues - http://wisewomengroup.com/wise-women-blogs/category/wise-woman-on-career-issues/~ Taunee Besson, a wise woman with Fibro, talks about working.
Liv A Betes ~ http://livabetes.com ~ Liv A Betes focuses on wellness inspiring comedy. Don’t miss The Glucose Police in GG’s Wisdom!
Lip Sticking: Smart Marketing to Women Online, http://windsormedia.blogs.com ~ This online blog is a marketing resource to all women.
The Cancer Blog - http://www.thecancerblog.com ~ This site offers information and resources to people living with cancer.
six until me - http://www.sixuntilme.com ~ Diabetes doesn’t define me but it helps explain me. Kerri writes from her heart about the daily struggles and laughs. This is a don’t miss.
Wise Women Group ~ http://wisewomengroup.com/wise-women-blogs/ ~ A woman’s place for information, motivation and connection.
Wise Women on Career Issues - http://wisewomengroup.com/wise-women-blogs/category/wise-woman-on-career-issues/~ Taunee Besson, a wise woman with Fibro, talks about working.
RESOURCES FOR LIVING WELL
Employment with MS - PDF booklet. Free download of Rosalind’s recent publication, produced in conjunction with Accelerated Cure Project for MS and Teva Neuroscience.
Employment with MS - PDF booklet. Free download of Rosalind’s recent publication, produced in conjunction with Accelerated Cure Project for MS and Teva Neuroscience.
Career Thrive Guidebook Series - the only series of its kind dedicated to giving the strategies and tactics you need to thrive in your career when you live with chronic illness.
Breckenridge Outdoor Education Center offering adaptive sports for people with disabilities
The Staying Employed Program for people with chronic illness who live in Massachusetts.
The Staying Employed Program for people with chronic illness who live in Massachusetts.
HealthTalk.com help people with chronic illnesses improve their quality of life, stay informed and live with hope via webcasts that feature leading medical experts and patients
CaringBridge offers free, easy-to-create web sites that help connect friends and family when you need it most. Check it out.
Vitals.com ~ http://vitals.com ~ provides a comprehensive, user-friendly and web based physician data base that lists 700,000 physicians in the U.S
BOOKS
~ Acquired Hope: A Journey of Advanced Recovery and Empowerment, Nicole Matoushek. This book is intended to allow individuals coping with chronic illness, addictive disease or injury to have an opportunity for a full recovery.
~ Blindsided: A Reluctant Memoir, Richard Cohen.
~ Body of Diminishing Motion: Poems and Memoir, Joan Seliger Sidey.
~ I’d Rather Be Working, A Step-by-Step Guide to Financial Self Support for
People with Chronic Illness, Gayle Backstrom.
~ Just Like Life, Only More So and Other Stories of Illness, Dana Snyder-Grant.
~ Know Your Rights: A Handbook for Patients with Chronic Illness, Jennifer C. Jaff, Esq.
~ Living Well with Automimmune Disease, Mary J. Shomon.
~ Living Well with a Hidden Disability: Transcending Doubt and Shame and Reclaiming Your Life, Stacy Taylor, MSW, with Robert Epstein Ph.D.
~ The Anatomy of Change: A Way to Move Through Life’s Transitions, Richard Strozzi Hechler.
~ The Anatomy of Hope: How People Prevail in the Face of Illness, Jerome Groopman, M.D.
~ The Autoimmune Connection: Essental Information for Women on Diagnosis, Treatment, and Getting on with your Life, Rita Baron-Faust, Jill P Buyon, M.D.
~ The Power of Focusing: A Practical Guide to Emotional Self-Healing, Ann Weiser Cornell.
~ Waking the Tiger: Healing Trauma, Peter A. Levine with Ann Frederick.
~ We Are Not Alone: Learning to Live with Chronic Illness, Sefra Kobrin Pitzele.
~ Women and Autoimmune Disease: The Mysterious Ways Your Body Betrays Itself, Robert G. Lahita, M.D., Ph.D. DISEASE WEBSITES AND NEWSLETTERS
Accelerated Cure Project for MS - a national non profit dedicated to curing MS by determining its causes.
American Automimmune Related Diseases Association
Arthritis Foundation
Celiac Sprue Association
Chronic Syndrome Support Association
Crohn’s & Colitis Foundation of America
CFIDS Association of America
Epilepsy Foundation of America
Fibromyalgia Community
FMS Community Newsletter
International Pemphigus Foundation
Hypertrophic Cardiomyopathy Association
Kelly Packowski Foundation for MS - changing one life at a time - raises funds to directly impact the lives of those fighting this disease and enhance the community’s understanding of MS
National CFIDS Foundation
National MS Society
National Psoriasis Foundation
Scleroderma Foundation
New Mobility.com
Rest Ministries
1-800-TOLL FREE NUMBERS for HEALTH INFORMATION
Allergy Information Referral Line, 1-800-822-2762
Alzheimer’s Association, 1-800-272-3900
Alzheimer’s Disease Education and Referral Center, 1-800-438-4380
American Association of Kidney Patients, 1-800-749-2257
American Cancer Society Response Line, 1-800-227-2345
American Council of the Blind, 1-800-424-8666
American Diabetes Association, 1-800-232-3472
American Foundation for Urologic Disease, 1-800-242-2383
American Heart Association Stroke Connection, 1-800-553-6321
American Institute for Cancer Research, 1-800-843-8114
American Kidney Fund, 1-800-638-8299
American Leprosy Missions (Hansen’s Disease), 1-800-543-3131
American Liver Foundation, 1-800-223-0179
American Paralysis Association, 1-800-225-0292
American Parkinson’s Disease Association, 1-800-223-2732
American Speech-Language-Hearing Association, 1-800-638-8255
APA Spinal Cord Injury Hotline, 1-800-526-3456
Arthritis Foundation Information Hotline, 1-800-283-7800
Asthma and Allergy Foundation of America, 1-800-727-8462
Better Hearing Institute, 1-800-327-9355
Brain Injury Association, Family Helpline, 1-800-444-6443
Cancer Information Service, 1-800-4-CANCER; 1-800-422-6237
CDC National AIDS Clearinghouse, 1-800-458-5231; 243-7012 (TDD)
CDC National HIV and AIDS Hotline, 1-800-342-2437; 1-800-344-7432 (Spanish);
1-800-243-7889 (TDD)
Crohn’s and Colitis Foundation of America, Inc., 1-800-932-2423
Cystic Fibrosis Foundation, 1-800-344-4823
Deafness Research Foundation, 1-800-535-3323
Epilepsy Foundation of America, 1-800-332-1000
Guide Dog Foundation for the Blind, Inc. 1-800-548-4337
Huntington’s Disease Society of America, 1-800-345-4372
Job Accommodation Network, JAN, 1-800-526-7234
Juvenile Diabetes Foundation International Hotline, 1-800-223-1138
Lighthouse National Center for Vision and Aging, The, 1-800-334-5497
Living Bank, The, 1-800-528-2971
Lung Line National Jewish Center for Immunology and Respiratory
Medicine, 1-800-222-5864; 1-800-552-LUNG or 1-800-552-5864 (LUNG FACTS)
Lupus Foundation of America, 1-800-558-0121
Medic Alert Foundation, 1-800-432-5378; 1-800-344-3226
Medicare Telephone Hotline, 1-800-638-6833
Multiple Sclerosis Association of America, 1-800-LEARN-MS or 1-800-532-7667
National Center for Sight, 331-2020
National Eye Care Project Hotline, 1-800-222-EYES or 1-800-222-3937
National Eye Research Foundation, 1-800-621-2258
National Headache Foundation, 1-800-843-2256
National Health Information Center, 1-800-336-4797
National Information Center for Orphan Drugs and Rare Diseases,
1-800-300-7469
National Institute of Mental Health, 1-800-647-2642 or 1-800-421-4211
National Institute on Deafness and Other Communication Disorders
Information Clearinghouse, 1-800-241-1044; 1-800-241-1055 (TT)
National Kidney Foundation, 1-800-622-9010
National Neurofibromatosis Foundation, 1-800-323-7938
National Organization for Rare Disorders, 1-800-999-6673
National Parkinson’s Foundation, Inc., 1-800-327-4545
National Rehabilitation Information Center, 1-800-346-2742
Policy Research Associates, 1-800-444-7415 ext. 232
National Reye’s Syndrome Foundation, 1-800-233-7393
National Spinal Cord Injury Association, 1-800-962-9629
National Stroke Association, STROKES or 1-800-787-6537
National Tuberous Sclerosis Association, 1-800-225-6872
National institute of Neurology - Post Polio Resource
Project Inform HIV/AIDS Treatment Hotline, 1-800-822-7422
Sickle Cell Disease Association of America, 1-800-421-8453
Simon Foundation for Continence, The, 1-800-237-4666
United Cerebral Palsy Association, 1-800-872-5827
United Network for Organ Sharing, 1-800-243-6667
United Scleroderma Foundation, 1-800-722-HOPE or 1-800-722-4673
Y-ME National Organization for Breast Cancer Information Support
Program, 1-800-221-2141
EMPLOYMENT RESOURCES
Advocacy for Patients with Chronic Illness
Disability Rights and Resources
Disabled Online Users Association
Job Accommodation Network (JAN)
National Organization of Social Security Claimants’ Representatives
U.S. Dept of Labor, Office of Disability Employment Policy
Note: The resources are included as possible starting points for additional research. Rosalind Joffe, Joan Friedlander and cicoach.com and do not necessarily endorse the content, format or suggestions made in the resources listed herein. Please consult medical and legal experts with any specific questions or individual needs.
